Retinitis Pigmentosa

Retinitis Pigmentosa

The term retinitis pigmentosa (RP) refers to a set of degenerative genetic diseases that gradually kill off the light-sensing cells (rods and cones) of the retina, eventually causing blindness. It is a relatively rare genetic disorder, affecting only 1 in 4,000 people. Retinitis pigmentosa can be difficult to adapt to without proper support. Although there is currently no cure for RP, regular visits with your eye care professional are important to monitor the progression of the disease, adapt to the condition, and become aware as new RP treatments are available.

Symptoms of Retinitis Pigmentosa

Although there are variations dictating how a person inherits and develops retinitis pigmentosa, this condition is usually characterized by the following symptoms:

  • Poor and narrowing peripheral (side) vision.
  • Difficulty seeing or driving in dimly-lit conditions. This is often called “night blindness.”
  • As the disease progresses, vision may narrow to just a small, central vision field or “tunnel vision.”
  • Difficulty discerning colors.
  • Problems reading or doing intricate work due to deficiencies in the central field of vision, which often disappears first.

The progression of the disease can vary significantly depending on whether the condition is inherited as a dominant or recessive trait. Regular testing by your eye care professional is very important if you have RP for two reasons:

  1. Eye exams and vision tests can give you an idea of how your condition is progressing so that you can be aware of and prepare for any adaptations you need to make as your vision declines.
  2. With modern technology, there are currently efforts under way to provide treatments to slow the progression of RP, or to create solutions that simulate the behavior of healthy retina cells. Your eye care professional can inform you of any developments that might be able to make a positive impact in the quality of your life as you live with this condition.

If you or a loved one suffers from any of these symptoms, please contact your eye care professional today for an appointment.

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  • ""Our 9-year old son completed vision therapy with great results. The therapy coincided with going on no sugar/no gluten/no dairy diet. Both interventions had a major impact on our son’s behavior: he is calmer and has a much easier time concentrating. It had always been a struggle for him to read. With these interventions, he just started to pick up books on his own. He reads without anyone nagging him and he loves the experience. Wow.”"
    Stefaniya B.
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    Robyn - Tyler's Mother
  • "Our daughter did the at home light therapy. We saw a huge difference in her pretty quickly. She became more confident and her reading improved as well. After completing the therapy she had no problem reading to her entire class in fact she asked to all the time.

    It was also very easy therapy done at home and together!"
    Mya M.
  • "Before I started, I was having a really hard time reading, often skipping words and experiencing double vision. Now I feel really good about reading. I feel better about myself. I even ask to read in front of my class!"
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